Our Stories

PANDAS - A Story of Hope and Recovery

The story of a son's recovery from PANDAS - (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections) after years of misdiagnosis of OCD, anxiety, ADHD, and Tourette's.

Mia

In April of 2010, we put our happy, normal 4 year old to bed. She woke in the middle of the night with facial tics and severe hallucinations. Things got bad fast. She became incapacitated curled up on the couch, naked under a sheet. We took her to the top children's hospitals in our area and although they found elevated strep titers and whispered PANDAS - they only offered psych meds. I called Dr T on a Sunday night - he answered the phone. I briefly described what was happening - he said "We'll get her better" - and he did. It's been a rough road of ups and downs - we didn't think we would get her back. I am overjoyed to say Mia is a happy, well adjusted 10 year old little girl. She loves drawing and dodgeball. Dr T truly is our angel.

Analee

Hi Dr. T., Paul & Mary,

Just some bright and cheery news to start this beautiful weekend.

Analee along with a few of her friends decided they wanted to do something good for some of the sick children at our local hospital. So they decided to put together bags filled with activities and games for the children that are staying at Cohen's Children's Hospital.

I couldn't be more proud!

Here are a few pictures, Analee is in the Red dress. She is doing fantastic btw!!!

Cheers!

Love,
Cynthia Salvatico


Teagan

We feel like we haven't seen, "our daughter" in over a year. We know she is in there, and we see glimpses of her, but PANS has taken over her. In her words, "I just don't want to be sad and angry anymore". Dr. T and your staff have been the first people to believe in us and my daughters struggle, and we finally feel like she is in the right hands and under the right care. We can't begin to tell you how much that means. Lucia has helped greatly too, especially with the IVIG infusions!

Josephine

Meet Josephine with the help of Lucia her visit with Dr Trifiletti was less stressful.